Abstract
The paper explains the usage of the terms «personal meaning of disease» and «adherence» to describe variants of mother’s attitude to her child’s disease. Based on the analysis of 25 mothers raising infants suffering from cerebral palsy, such personal meanings in relation to the child’s illness as conflict and barrier were identified; examples of possible secondary benefits from the child’s illness were depicted. Separately, a group of mothers after IVF with a mixed (barrier and conflict) personal meaning of the disease was described. Several assumptions were made about the factors that determine the harmonious person-notional context related to the infant’s illness. Within the framework of selected groups, mothers’ suppositions about the causes of their children’s illnesses were examined. Three degrees of adherence to the treatment of a disabled infant were outlined to illustrate the process of upbringing infants with cerebral palsy. Also, their connection with the personal meaning of a child’s disease for parents and their suppositions about it was shown. The characteristic features of understanding adherence to treatment of similar diseases were marked out. The results demonstrate the necessity of psychological support programs for families with infants with cerebral palsy. Moreover, the obtained date will allow to individualize the strategy of psychological work, and it can become the basis of further research conducted in order to develop and improve the psychological support programs for families with children suffering chronic disabling diseases.
Received: 05/27/2016
Accepted: 06/12/2016
Pages: 61-72
DOI: 10.11621/npj.2016.0206
PDF: Download
Keywords:
treatment adherence;
compliance;
personal meaning of disease;
cerebral palsy;
Available Online 30.08.2016
a:2:{s:4:"TEXT";s:5009:"<h2>References:</h2>
<p>
<b>Affleck, G., McGrade, B.J., Allen, D.A., & McQueeney, M.</b> (1985) <i>Mothers’ beliefs about behavioral causes for their developmentally disabled infant’s condition: What do they signify?</i>
Journal of Pediatric Psychology. 10, 293 – 303.
</p>
<p>
<b>Aronson, J.F.</b> (2007) <i>Compliance, concordance, adherence. </i>Br J Clin Pharmacol. 63, Vol. 4, 383 – 384.
</p>
<p>
<b>Becker, M.H., & Maiman, L.A.</b> (1983) <i>Models of health-related behavior.</i> In Mechanic, D. (Ed.) Handbook of Health, Health Care, and the Health Professions. New York, The Free Press, 539 – 553.
</p>
<p>
<b>Becker, M.H., & Maiman, L.A.</b> (1975) <i>Sociobehavioral determinants of compliance with health and medical care recommendations. </i>Med Care. 13, 10 – 24.
</p>
<p>
(2013) <i>Cerebral Palsy: Hope Through Research.</i> <b>National Institute of Neurological Disorders and Stroke</b>.
</p>
<p>
<b>Craig, T.K.J., Drake, H., Mills, K., & Boardman, A.P.</b> (1994) <i>The South London somatisation study II</i>. Influence of stressful live events, and secondary gain. Br J Psychiatry. 165, 248 – 258.
</p>
<p>
<b>Cramer, B.</b> (1976) <i>A</i> <i>mother’s reactions to the birth of a premature baby</i>. In Klaus, M., & Kennell, J. (Ed.). Maternal-infant bonding. St. Louis, Mosby.
</p>
<p>
<b>Danseco, E.</b> (1997) <i>Parental beliefs on childhood disability: Insights on culture, child development and intervention.</i>
International Journal of Disability, Development, and Education. 44, 41 – 52.
</p>
<p>
<b>Foster, T., Rai, Al., Weller, R.A., Dixon, T.A., & Weller, E.B.</b> (2010) <i>Psychiatric complications in cerebral palsy.</i> Curr Psychiatry Rep. 12, Vol. 2, 116 – 21.
</p>
<p>
<b>George, J., Kong, D., & Stewart, K.</b> (2007) <i>Adherence to disease management programs in patients with COPD</i>. International Journal of COPD. 2, Vol. 3, 253 – 262.
</p>
<p>
<b>Handen, B.L., Feldman, R.S., & Honigman, A.</b> (1987) <i>Comparison of parent and teacher assessments of developmentally delayed children’s behavior.</i> Exceptional Children. 54, 137 – 144.
</p>
<p>
<b>Harkness, S., & Super, C.</b> (1994) <i>The developmental niche: A theoretical framework for analyzing the household production of health</i>. Social Science and Medicine. 38, 217 – 226.
</p>
<p>
<b>Kazak, A.E., McClure, K.S., Alderfer, M.A., Hwang, W.T., Crump, T.A., Le, L.T., Deatrick, J., Simms, S., & Rourke, M.T.</b> (2004) <i>Cancer-related parental beliefs: the Family Illness Beliefs Inventory (FIBI).</i> J Pediatr Psychol. 29, Vol.7, 531 – 542.
</p>
<p>
<b>Kvasenko, A.V., & Zubarev, Ju.G.</b> (1980) <i>Patient psychology</i>. L., Medicina.
</p>
<p>
<b>Lavelle, N., & Keogh, B.,</b> (1980) <i>Expectations and attributions of parents of handicapped children</i>. In Gallagher, J. (Ed.) New directions for exceptional children. San Francisco, Jossey-Bass.
</p>
<p>
<b>Leont’ev, A.N.</b> (1975) <i>Activity, consciousness, personality</i>. Moscow, 304.
</p>
<p>
<b>Mardiros, M.</b> (1989) <i>Conception of childhood disability among Mexican-American parents</i>. Medical Anthropology. 12, 55 – 68.
</p>
<p>
<b>Meshherjakova, B.G., & Zinchenko, V.P.</b> (Ed.) (2003) <i>Big psychological dictionary</i>. Moscow, AST.
</p>
<p>
<b>Nikolaeva, V.V. </b>(1987) <i>The way chronic diseases influence one’s psyche</i>. Moscow, Izdatel’stvo Moskovskogo universiteta, 168.
</p>
<p>
<b>Pebley, A., Hurtado, E., & Goldmen, N.</b> (1999) <i>Beliefs about children’s illness.</i> J Biosoc Sci. 31, Vol. 2, 95 – 219.
</p>
<p>
<b>Piggot, J., Hocking, C., & Paterson, J.</b> (2003) <i>Parental adjustment to having a child with cerebral palsy in participation in home therapy programs.</i> Physical and Occupational Therapy in Paediatrics. 23, Vol. 4, 5 – 29.
</p>
<p>
<b>Ryan, A.S., & Smith, M.J.</b> (1989) <i>Parental reactions to developmental disabilities in Chinese American families. </i>Child and Adolescent Social Work. 6, 283 – 299.
</p>
<p>
<b>Sexton, D., Thompson, B., Perez, J., & Rheams, T.</b> (1980) <i>Maternal versus professional estimates of developmental status for young children with handicaps: An ecological approach</i>. Topics in Early Childhood Special Education. 10, 80.
</p>
<p>
<b>Sloper, P., & Turner, S.</b> (1993) <i>Risk and resistance factors in the adaptation of parents of children with severe physical disability.</i> J Child Psychol Psychiatry. 34, Vol. 2, 167 – 88.
</p>
<p>
<b>Sokolova, E.T., & Nikolaeva, V.V.</b> (1995) <i>Personality peculiarities of people with border psychic and somatic disorders. </i>Moscow, SvR-Argus.
</p>
<p>
<b>Stahl, A.</b> (1991) <i>Beliefs of Jewish-Oriental mothers regarding children who are mentally retarded</i>. Education and training in mental retardation. 26, 361 – 369.
</p>
<b>Tkhostov, A. Sh.</b>
(2002) <i>Corporeity psychology</i>. Moscow,
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For citing this article:
Pervichko Elena I., Dovbysh Daria V. (2016). National Psychological Journal. 2, 61-72.